Web Sites related to Transplantation
Transplantation This site is the home of the New England Organ
Bank and contains information on transplantation relating to
kidneys, livers, hearts, lungs, pancreas', heart/lungs, corneas,
tissues and bone. It also contains reference papers and links to
American Society of Transplant
Physicians As its name suggests, this site relates to the above
society and contains general information about the group, details
of Awards made, public policy, membership and various
American Society of
Transplant Surgeons From this site it is possible to access
quite a wide range of information on transplantation, including
journals, recent presentations and case reports. It also contains
information on intestinal transplantation and reference
American Share Foundation When
visited, the site was still under construction, however the
American Share Foundation is a national US charity aimed at
candidates for transplantation, transplant recipients, caregivers,
families and members of the public. It has links to lots of other
transplant related sites.
Association of Kidney Patients This is a support group which
was founded over 25 years ago, and contains information about the
history of the society, forthcoming meetings, details of patients'
rights and online support newsgroups. In the event of difficulty
accessing this site directly, visit Transweb (see later note) which
links to this group via its patient support groups section.
Liver Foundation A national, voluntary, non-profit making
health organisation dedicated to preventing, treating and curing
hepatitis and all liver disease through research, education and
support groups. Includes information about liver diseases, lists of
current clinical trials and research and details of liver
specialists by region.
American Association for
the Study of Liver Disease This can be accessed via the
American Liver Foundation if necessary and is an organisation of
physicians and biomedical scientists with an interest in the liver
and its diseases. Contains membership information, details of
forthcoming meetings, a research update and reviews of
American Red Cross
Tissue Donation Web Page Contains information on the location
of tissue services in the US, and on how to become a tissue donor.
Also includes basic information on tissue donation, and the
families of recipients share their stories.
& Marrow Transplant Registry of North America This is a
joint site with the International Bone Marrow Transplant Registry
and contains good statistics and patient information, details of
forthcoming meetings, newsletters, and links to other related
Atresia & Liver Transplantation Network A non-profit making
organisation set up by mothers of children with biliary atresia.
Gives details of the disease and about the organisation and how to
join. Provides copies of the group's newsletter The Biliary Tree
on-line and information about activities aimed at children through
their own Club.
British Organ Donor
Society (BODY) This site is still fairly embryonic, but gives
details of the UK charity BODY, and of the umbrella group TIME -
Transplants in Mind. TIME organises the annual public awareness
campaign National Transplant Week, and represents all the major UK
charities involved in organ donation and transplantation. The site
also gives information on the British Transplant Games.
Bone Marrow Donors
Worldwide Bone Marrow Donors Worldwide is a project aiming to
collect HLA phenotypes of bone marrow donors and cord blood units
for distribution worldwide. It has an on-line matching programme,
and research links to other Organisations, and donor registries
across the world.
Donation This is a US alliance of national organisations and
local coalitions to educate the public about transplantation.
Contains details of planned activity and strategy across the
Children's Organ Transplant
Association With the aim of helping raise funds, the COTA group
works to ensure that no individual in the US is excluded from
transplantation because of a lack of funds. Contains personal
testimonies and general information on transplantation
Organ Donation and Transplantation As its name suggests, this
site provides some fairly basic facts and figures about
transplantation. It is provided by UNOS (see later note) and can be
accessed via their main site.
Marrow Transplant Registry See Autologous Blood & Marrow
Transplant Registry of North America
Coalition on Donation A non profit alliance of professional,
patient, health, science, transplant and voluntary organisations
which works to increase public awareness of organ and tissue
donation. Contains a number of links to other good transplantation
Facts about Organ Donation & Transplantation Similar in
tone and content to Facts about Organ Donation &
Organ Retrieval & Exchange Programme of Ontario (Canada)
The MORE project was set up to facilitate and coordinate donation
and retrieval/distribution of organs throughout Canada. The site
provides patient testimonies as well as plenty of statistics on
organ donation. It also gives links to Canadian centres and
provides a registration form for completion.
Institute of Diabetes & Digestive & Kidney Disease This
site contains a wide range of information on the above diseases,
with some information on transplantation. It gives links to other
pages, plus copies of recent press releases and sources of
National Kidney Federation
(US) This site looks as if it will be a useful source of
information, not just about kidney transplants, but kidney disease
in general, as well as details of public education and fundraising
campaigns planned. However, at the time of visiting, large sections
of the site were still under construction. Well worth visiting.
Assistance Fund Formerly the National Heart Assistance and
Transplant fund, this is a non profit organization providing
financial, social and emotional support to transplant
Organ Transplantation Newsgroup Exchange news and views on-line
with other users in this discussion group.
Square A service to transplantation offered by Sandoz, this
site contains information about organ donation and transplantation,
looks at xenotransplantation and offers links to other sites with
information about transplants.
Transplant & Related Support This site advertises a UK
based organisation, but is extremely out of date. When visited, it
only contained information for a conference held during September
The Transplant News This
site advertises an independent newsletter (US based), issued
fortnightly throughout the year.
Transweb - Transplantation and
Donation This site contains a huge amount of information, with
sections for patient information and information for healthcare
professionals. One very useful area is their page Transplantation
resources on the Internet with links to other web sites related to
transplantation. However, like many web pages, it is US based,
which means there is not much information on activities taking
place outside the States. This is the most comprehensive site
visited, and the best first stop on a tour of transplant related
resources on the internet.
Within Transweb, access the following pages:
for Medical Professionals
Tissue Donation: Issues & Answers
Resources on the Internet
UNOS, United Network for
Organ Sharing Gives a wide range of information including
details on UNOS, facts and statistics related to transplantation,
public resources and policy proposals, forthcoming events, news
releases and links to other transplant related sites. Also gives
information on how to work for UNOS
If you want to read about the UNOS restrictions for heppers,
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