Online support groups
place to go for more answers about HCV, and to chat with others who
have the disease, is the HEPV-L Mailing list. HEPV-L is a list
devoted to people with chronic hepatitis, and related liver
Its address is HEPV-L@MAELSTROM.STJOHNS.EDU.
here for details on how to subscribe to the mailing
is now a second HEPC internet support mailing list. Open format
with information, questions/answers, and comments on hepatitis with
an international group. The HEPC List is new and creates a warm,
positive atmosphere with unquestionable support for all members.
Input for HEPC List-activities and future List development is
warmly received. The List is enjoyable, fun, and refreshing. Open
discussion on the HEPC List functions and administrative procedures
enable members to participate in its further development, and
creates a real sense of community spirit and effort.
here for details on how to subscribe.
C Chat Site
is also an online support group for Canadians. It currently
consists of about 50 subscribers. To subscribe to the Canadian
online support group go to http://www.egroups.com/list/hepcan/
to sign up.
There you will be asked to register. Once you register ie fill in
you email address and click on "forgot password" you will be sent a
special password form. Once you complete this you will be able to
delete your postings if you wish, view membership lists and change
your subscription options anytime you want.
You can also email Darlene at firstname.lastname@example.org for more
also a support group called "Hepatitis-Family Members Mailing
List". To join this list:
Send an e-mail to email@example.com
To send a message to all list members, send an email to:
firstname.lastname@example.org and it will go to
everyone subscribed to the mailing list.
single "heppers" who want to meet one another, there are 2
places I know of online for your to meet.
The first place is located at website: http://www.insidetheweb.com/messageboard/mbs.cgi?acct=mb293240
The second place is at this website: http://www.egroups.com/group/PS-Hep
This site is not about medical info, nor is it an activism forum
and it *will* be moderated.. The goal is to provide a safe,
confidential forum for hepper singles of any sexual orientation,
religious affiliation, ethnicity or age where fun and companionship
are the goal. Member information and messages will *not* be
accessible to the public!
Anyone interested in joining will be *required* to fill out a brief
(really, profile before you will be subscribed. If you have a
Yahoo, Hotmail or other similar account, you'll be asked for some
additional personal information before being signed on. Profiles
will be periodically reposted, so there won't be any lurking! If
you're interested, you can email me directly at email@example.com or PS-Hep@egroups.com, or go directly
to the website and click subscribe.
a chat hosted on AOL Allhealth Personal Empowerment. Chats are held
on Wednesday at 8:00pm EST. URL is http://clubs.yahoo.com/clubs/heprandisupportforhepatitis
is also a discussion group for alternative therapies used in
treatment of Hepatitis. To subscribe to this list, go to the
following web page: http://www.onelist.com/subscribe.cgi/jovo
OR send a blank email to firstname.lastname@example.org
is also an online chat club on Yahoo for heppers.
here for more info, or send email to email@example.com
another noteworthy project: "Where Heppers Live". You can locate
and contact heppers in your area. The website: http://www.hepchotel.com
Has a list of hepper contacts in the USA, and a worldwide list
(country by country). You can get added to the list! The bigger the
list gets the more capable we become of finding other heppers in
our own area.
Send email to: firstname.lastname@example.org
Here are links to the website:
Heppers in the United States:(state by state) http://www.hepchotel.com/live/unitedsts.html
personal stories from other heppers at http://arizonahepc.homestead.com/PatientStories.html
and also at http://www.recoveringhepc.com/stories.htm
is also a support group called "The Fellow Heppers Private Pod".
Here's the info to join.
This is an official invite to join "THE FELLOW HEPPERS PRIVATE
POD", a new private support group for members with Hepatitis only
(and their close family/friends) A place where we can just kick
back, let our hair down and not have to explain every little thing
we say or feel because the rest of us already understand!
Go to Fellow Heppers
Private Pod and check it out for yourself. If you, or someone
you know, decides they would like to become a member just follow
the procedure outlined below. Trust me, joining up is much quicker
and much easier than the amount of time and energy it took to write
this all out. However, to join the group is a several step process,
but, if you follow it exactly as I have outlined below, you will
have no trouble.
If you are already a member of Tripod, you can skip down to #2
#1 - You must sign up as a Tripod member at:
Member Sign Up
(*NOTE* for new members, you can go change your password AFTER this
procedure for pod membership is finished. All you need to be
approved for membership is your Tripod member name, we do not want
nor need your password.)
#2 - Now that you are a Tripod member, go back to:
Heppers Private Pod
#3 - Click on the "MEMBERS" icon at the top of the page
#4 - You will get a rather obnoxious screen message (that is from
Tripod, not me!) telling you that you must be "approved" for
membership, and a form to fill out.
*NOTE* When you fill out the form, be sure to use the EXACT Tripod
Member Name IN THE EXACT UPPER/LOWER CASE SEQUENCE YOU SIGNED UP
AS. This is very important because all Tripod member names are case
sensitive, so not doing it Tripod's way the first time will just
delay your membership.
It is the Tripod member name that allows me to add you to the
Please be sure to double check the e-mail address you entered also,
to avoid delays in my reply to you. We all want to get chatting and
posting and rockin' and rollin' ASAP!!!
In the comments section of the form, please state what type of
Hepatitis you have (B,C, etc.), when you were diagnosed, and,
approx. how long you've had it. This information is required. If it
weren't then it would not be a "private" pod would it?
#6 - Click on the "submit" button at the bottom! That's it!
As soon as I receive your form, I'll add you to the pod and reply
to your message saying "YOU'RE IN, BABE"........LOL that way you
don't have to go through the hassle of checking back at the site
every few hours.
Thank you for cooperating and helping the entire process run
smoothly. I'll be looking forward to meeting lots of you, and BTW
we'll be needing some volunteers to help out with newsletters and
such, so if you want to volunteer, don't be shy!!
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